Relations with patients' associations
LFB provides long-term support to patients’ associations, chiefly those concerned with rare diseases, with a twin focus: contributing to a better understanding of these diseases and developing initiatives to improve patients’ quality of life.
In 2021 this commitment has been evidenced by LFB’s support for the concrete activities in particular of the ADAAT (French association for alpha-1 antitrypsin defi cient patients), AF3M (French association for multiple myeloma patients), AFH (French association for haemophiliacs), WFH (World federation of haemophilia), EHC (European haemophilia consortium), AFNP (French association for peripheral neuropathies), IRIS (French association for patients with primary immunodefi ciencies) and IPOPI (International patient organisation for primary immunodefi ciencies).
Patient associations have an essential role to play in healthcare and accompanie patients and their families. We invite you to discover thei video interview : Jean-Philippe Plançon, President of AFNP, Virginie Milière and Matteo Pellegrinuzzi from IRIS association and Sandrine Lefrançois, the President of the ADAAT.
All the LFB’s partnerships with French patients associations are registered on the link below: https://www.transparence.sante.gouv.fr
For LFB, improving the quality of life of patients with chronic diseases in their care environment is primordial, particularly in the case of young children. For instance, in the last 16 years LFB also supports Le Rire Médecin, which organises visits of clowns to paediatric departments and to homes of young patients in France.