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Relations with patients' associations

Long-term support

LFB provides long-term support to patients’ associations, chiefly those concerned with rare diseases, with a twin focus: contributing to a better understanding of these diseases and developing initiatives to improve patients’ quality of life.
In 2018 LFB supported the following patients’ associations: ADAAT (alpha-1 antitrypsin deficiency), AF3M (multiple myeloma), AFNP (peripheral neuropathy),IRIS (immunodeficiency), AFH (haemophilia).

All the LFB’s partnerships with French patients associations are registered on the link below: https://www.transparence.sante.gouv.fr

For LFB, improving the quality of life of patients with chronic diseases in their care environment is primordial, particularly in the case of young children. For instance, in the last 16 years LFB has partnered the Le Rire Médecin association, supporting weekly visits from « hospital clowns » in the department of paediatric immunohematology of the Necker Hospital in Paris.

See also

Living with peripheral neuropathies, a video supported by LFB